\n $\"Con$ \n <\/div>

Khi c\u00f2n nh\u1ecf, hai ch\u1ecb em L\u00f2 Ng\u1ecdc M. th\u01b0\u1eddng xuy\u00ean ph\u1ea3i v\u00e0o vi\u1ec7n \u0111i\u1ec1u tr\u1ecb v\u00e0 truy\u1ec1n ti\u1ec3u c\u1ea7u<\/p>\n<\/figcaption><\/figure>\n

Nh\u1eefng n\u0103m tr\u01b0\u1edbc \u0111\u00e2y, n\u0103m n\u00e0o ch\u00e1u L\u00f2 Ng\u1ecdc M. c\u0169ng ph\u1ea3i n\u1eb1m vi\u1ec7n t\u1edbi 12-13 \u0111\u1ee3t. May m\u1eafn l\u00e0 trong v\u00e0i n\u0103m g\u1ea7n \u0111\u00e2y, nh\u1edd \u0111\u01b0\u1ee3c c\u00e1c y b\u00e1c s\u0129 t\u1ea1i Trung t\u00e2m Hemophilia, Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng t\u01b0 v\u1ea5n, ch\u1ecb L\u00fd Th\u1ecb C. \u0111\u00e3 bi\u1ebft c\u00e1ch ch\u0103m s\u00f3c, \u0111\u1ec1 ph\u00f2ng ch\u1ea3y m\u00e1u cho con n\u00ean nh\u1eefng l\u1ea7n \u0111i vi\u1ec7n c\u1ee7a c\u00f4 b\u00e9 L\u00f2 Ng\u1ecdc M. th\u01b0a h\u01a1n, kho\u1ea3ng 2 th\u00e1ng m\u1ed9t l\u1ea7n con l\u1ea1i ph\u1ea3i \u0111i t\u1eeb S\u01a1n La v\u1ec1 H\u00e0 N\u1ed9i.<\/p>\n

T\u01b0\u01a1ng t\u1ef1 nh\u01b0 hai con c\u1ee7a ch\u1ecb Chung, hai anh em ch\u00e1u Nguy\u1ec5n Thanh L. (10 tu\u1ed5i) v\u00e0 Nguy\u1ec5n Thanh P. (7 tu\u1ed5i) \u1edf B\u1eafc Ninh c\u0169ng c\u00f9ng \u0111i\u1ec1u tr\u1ecb b\u1ec7nh b\u1ea5t th\u01b0\u1eddng ch\u1ee9c n\u0103ng ti\u1ec3u c\u1ea7u b\u1ea9m sinh t\u1ea1i Trung t\u00e2m Hemophilia, Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng.<\/p>\n

T\u1eeb khi \u0111\u01b0\u1ee3c v\u00e0i th\u00e1ng tu\u1ed5i, c\u1eadu b\u00e9 Nguy\u1ec5n Thanh L. \u0111\u00e3 ph\u1ea3i t\u1eadp quen v\u1edbi nh\u1eefng \u0111\u1ee3t ch\u1ea3y m\u00e1u m\u0169i k\u00e9o d\u00e0i. M\u1ed7i l\u1ea7n nh\u01b0 v\u1eady, con c\u1ea7n \u0111\u01b0\u1ee3c v\u00e0o vi\u1ec7n v\u00e0 truy\u1ec1n ti\u1ec3u c\u1ea7u.<\/p>\n

N\u0103m 2021, d\u1ecbch b\u1ec7nh COVID-19 b\u00f9ng ph\u00e1t, \u0111i l\u1ea1i kh\u00f3 kh\u0103n, b\u1ed1 m\u1eb9 c\u00e1c con ch\u1ec9 bi\u1ebft c\u1ea7m c\u1ef1 b\u1eb1ng c\u00e1ch cho con u\u1ed1ng thu\u1ed1c c\u1ea7m m\u00e1u t\u1ea1i nh\u00e0. Nh\u01b0ng r\u1ed3i con \u0111i ti\u1ec3u ra m\u00e1u, t\u00ecnh tr\u1ea1ng ng\u00e0y c\u00e0ng n\u1eb7ng h\u01a1n. Ngay trong \u0111\u00eam, b\u1ed1 m\u1eb9 con ph\u1ea3i ch\u1ea1y xe m\u00e1y, \u0111\u01b0a con v\u1ec1 Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng \u0111i\u1ec1u tr\u1ecb.<\/p>\n

Vi\u1ec7c ch\u1ea9n \u0111o\u00e1n, \u0111i\u1ec1u tr\u1ecb b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng v\u1eabn g\u1eb7p nhi\u1ec1u kh\u00f3 kh\u0103n<\/h3>\n
T\u1ea1i Vi\u1ec7t Nam, \u01b0\u1edbc t\u00ednh c\u00f3 tr\u00ean 6.200 ng\u01b0\u1eddi m\u1eafc hemophilia (b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng) v\u00e0 c\u00f3 kho\u1ea3ng tr\u00ean 60% ng\u01b0\u1eddi b\u1ec7nh \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n v\u00e0 \u0111i\u1ec1u tr\u1ecb. Hemophilia l\u00e0 b\u1ec7nh ch\u1ea3y m\u00e1u di truy\u1ec1n g\u00e2y ra do gi\u1ea3m ho\u1eb7c b\u1ea5t th\u01b0\u1eddng ch\u1ee9c n\u0103ng y\u1ebfu t\u1ed1 \u0111\u00f4ng m\u00e1u. <\/p>\n
\u0110\u1eb7c \u0111i\u1ec3m n\u1ed5i b\u1eadt c\u1ee7a b\u1ec7nh l\u00e0 ch\u1ea3y m\u00e1u kh\u00f3 c\u1ea7m \u1edf b\u1ea5t k\u00ec v\u1ecb tr\u00ed n\u00e0o tr\u00ean c\u01a1 th\u1ec3, nh\u01b0ng hay g\u1eb7p nh\u1ea5t l\u00e0 ch\u1ea3y m\u00e1u \u1edf kh\u1edbp, c\u01a1. Ch\u1ea3y m\u00e1u c\u01a1 kh\u1edbp t\u00e1i ph\u00e1t nhi\u1ec1u l\u1ea7n d\u1eabn t\u1edbi bi\u1ebfn d\u1ea1ng kh\u1edbp, teo c\u01a1.<\/p>\n
N\u1ebfu ng\u01b0\u1eddi b\u1ec7nh kh\u00f4ng \u0111\u01b0\u1ee3c ph\u00e1t hi\u1ec7n s\u1edbm, ch\u1ea9n \u0111o\u00e1n v\u00e0 \u0111i\u1ec1u tr\u1ecb \u0111\u00fang c\u00e1ch s\u1ebd d\u1eabn t\u1edbi nh\u1eefng h\u1ec7 qu\u1ea3 kh\u00f4ng mong mu\u1ed1n nh\u01b0 suy nh\u01b0\u1ee3c, \u0111au \u0111\u1edbn, bi\u1ebfn ch\u1ee9ng v\u00e0 t\u1ed5n th\u01b0\u01a1ng kh\u1edbp v\u0129nh vi\u1ec5n, ho\u1eb7c n\u1eb7ng h\u01a1n l\u00e0 t\u1eed vong do ch\u1ea3y m\u00e1u \u1edf nh\u1eefng v\u1ecb tr\u00ed nghi\u00eam tr\u1ecdng. Nh\u1eefng bi\u1ebfn ch\u1ee9ng \u0111\u00f3 \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn ch\u1ee9c n\u0103ng s\u1ed1ng v\u00e0 t\u00e2m l\u00fd ng\u01b0\u1eddi b\u1ec7nh, l\u00e0m h\u1ecd t\u00e0n t\u1eadt, t\u1ef1 ti, h\u1ea1n ch\u1ebf kh\u1ea3 n\u0103ng giao ti\u1ebfp, h\u1ecdc t\u1eadp, lao \u0111\u1ed9ng v\u00e0 \u0111\u00f3ng g\u00f3p cho x\u00e3 h\u1ed9i.<\/p>\n
TS.BS Nguy\u1ec5n Th\u1ecb Mai, Gi\u00e1m \u0111\u1ed1c Trung t\u00e2m Hemophilia, Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng chia s\u1ebb: Hi\u1ec7n t\u1ea1i, Trung t\u00e2m Hemophilia, Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng \u0111ang qu\u1ea3n l\u00fd v\u00e0 theo d\u00f5i kho\u1ea3ng 150 ng\u01b0\u1eddi b\u1ec7nh b\u1ea5t th\u01b0\u1eddng ch\u1ee9c n\u0103ng ti\u1ec3u c\u1ea7u b\u1ea9m sinh, trong \u0111\u00f3 Glanzmann l\u00e0 r\u1ed1i lo\u1ea1n hay g\u1eb7p nh\u1ea5t. B\u1ec7nh di truy\u1ec1n l\u1eb7n tr\u00ean nhi\u1ec5m s\u1eafc th\u1ec3 s\u1ed1 17 v\u00e0 g\u1eb7p \u1edf c\u1ea3 nam l\u1eabn n\u1eef.<\/p>\n
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\n $\"Con$ \n <\/div>
\n
TS.BS. Nguy\u1ec5n Th\u1ecb Mai v\u00e0 chuy\u00ean gia n\u01b0\u1edbc ngo\u00e0i th\u0103m ng\u01b0\u1eddi b\u1ec7nh r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u<\/p>\n<\/figcaption><\/figure>\n
Ti\u1ec3u c\u1ea7u l\u00e0 nh\u1eefng t\u1ebf b\u00e0o nh\u1ecf, \u0111\u1ee9ng r\u1eddi r\u1ea1c trong l\u00f2ng m\u1ea1ch. Khi m\u1ea1ch m\u00e1u b\u1ecb t\u1ed5n th\u01b0\u01a1ng, ti\u1ec3u c\u1ea7u s\u1ebd g\u1eafn v\u00e0o nhau v\u00e0 g\u1eafn v\u00e0o l\u1ed7 th\u1ee7ng c\u1ee7a m\u1ea1ch m\u00e1u t\u1ea1o th\u00e0nh c\u00e1i n\u00fat, gi\u00fap m\u00e1u ng\u1eebng ch\u1ea3y.<\/p>\n
Ti\u1ec3u c\u1ea7u \u1edf ng\u01b0\u1eddi b\u1ec7nh b\u1ea5t th\u01b0\u1eddng ch\u1ee9c n\u0103ng c\u00f3 s\u1ed1 l\u01b0\u1ee3ng b\u00ecnh th\u01b0\u1eddng nh\u01b0ng ch\u1ee9c n\u0103ng k\u00e9m n\u00ean kh\u1ea3 n\u0103ng c\u1ea7m m\u00e1u k\u00e9m. \u0110\u1ec3 ch\u1ea9n \u0111o\u00e1n b\u1ec7nh c\u1ea7n t\u1edbi c\u00e1c x\u00e9t nghi\u1ec7m chuy\u00ean s\u00e2u v\u00e0 c\u00e1c x\u00e9t nghi\u1ec7m n\u00e0y m\u1edbi \u0111\u01b0\u1ee3c tri\u1ec3n khai ch\u1ee7 y\u1ebfu \u1edf c\u00e1c b\u1ec7nh vi\u1ec7n l\u1edbn.<\/p>\n
Tri\u1ec7u ch\u1ee9ng c\u1ee7a b\u1ec7nh l\u00e0 ch\u1ea3y m\u00e1u m\u0169i, ch\u00e2n r\u0103ng, xu\u1ea5t huy\u1ebft d\u01b0\u1edbi da, xu\u1ea5t huy\u1ebft ti\u00eau h\u00f3a, ti\u1ec3u \u0111\u1ecf, nghi\u00eam tr\u1ecdng h\u01a1n l\u00e0 xu\u1ea5t huy\u1ebft n\u00e3o, ch\u1ea3y m\u00e1u sau ph\u1eabu thu\u1eadt.<\/p>\n
\u0110\u1eb7c bi\u1ec7t, ph\u1ee5 n\u1eef th\u01b0\u1eddng ch\u1ea3y m\u00e1u li\u00ean quan \u0111\u1ebfn kinh nguy\u1ec7t v\u00e0 qu\u00e1 tr\u00ecnh sinh con n\u00ean c\u1ea7n theo d\u00f5i ch\u1eb7t ch\u1ebd h\u01a1n. Ng\u01b0\u1eddi b\u1ec7nh c\u1ea7n \u0111\u01b0\u1ee3c qu\u1ea3n l\u00fd su\u1ed1t \u0111\u1eddi t\u1ea1i c\u00e1c c\u01a1 s\u1edf y t\u1ebf.<\/p>\n
Chuy\u00ean gia cho bi\u1ebft, hi\u1ec7n b\u1ec7nh suy nh\u01b0\u1ee3c ti\u1ec3u c\u1ea7u ch\u01b0a c\u00f3 ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb \u0111\u1eb7c hi\u1ec7u, ch\u1ee7 y\u1ebfu l\u00e0 truy\u1ec1n kh\u1ed1i ti\u1ec3u c\u1ea7u n\u1ebfu ch\u1ea3y m\u00e1u nhi\u1ec1u.<\/p>\n
PGS.TS Nguy\u1ec5n H\u00e0 Thanh, Vi\u1ec7n tr\u01b0\u1edfng Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng cho bi\u1ebft: Vi\u1ec7n Huy\u1ebft h\u1ecdc \u2013 Truy\u1ec1n m\u00e1u Trung \u01b0\u01a1ng \u0111\u00e3 tri\u1ec3n khai \u0111\u1ea7y \u0111\u1ee7 c\u00e1c x\u00e9t nghi\u1ec7m chuy\u00ean s\u00e2u ph\u1ee5c v\u1ee5 ch\u1ea9n \u0111o\u00e1n, theo d\u00f5i \u0111i\u1ec1u tr\u1ecb cho ng\u01b0\u1eddi b\u1ec7nh b\u1ea5t th\u01b0\u1eddng ch\u1ee9c n\u0103ng ti\u1ec3u c\u1ea7u. C\u00f9ng v\u1edbi s\u1ef1 ph\u00e1t tri\u1ec3n c\u1ee7a ho\u1ea1t \u0111\u1ed9ng truy\u1ec1n m\u00e1u, ng\u01b0\u1eddi b\u1ec7nh t\u1ea1i Vi\u1ec7n \u0111\u01b0\u1ee3c truy\u1ec1n ch\u1ebf ph\u1ea9m m\u00e1u k\u1ecbp th\u1eddi nh\u1edd t\u1ea5m l\u00f2ng c\u1ee7a ng\u01b0\u1eddi hi\u1ebfn m\u00e1u c\u0169ng nh\u01b0 ng\u01b0\u1eddi hi\u1ebfn ti\u1ec3u c\u1ea7u.<\/p>\n
“Tuy nhi\u00ean, t\u1ea1i nhi\u1ec1u b\u1ec7nh vi\u1ec7n tuy\u1ebfn d\u01b0\u1edbi vi\u1ec7c ch\u1ea9n \u0111o\u00e1n, \u0111i\u1ec1u tr\u1ecb b\u1ec7nh v\u1eabn g\u1eb7p nhi\u1ec1u kh\u00f3 kh\u0103n. Kh\u1ed1i ti\u1ec3u c\u1ea7u ch\u1ec9 c\u00f3 h\u1ea1n s\u1eed d\u1ee5ng ng\u1eafn (t\u1eeb 3-5 ng\u00e0y) n\u00ean vi\u1ec7c ti\u1ebfp nh\u1eadn c\u0169ng nh\u01b0 l\u01b0u tr\u1eef ti\u1ec3u c\u1ea7u kh\u00f3 tri\u1ec3n khai t\u1ea1i nhi\u1ec1u \u0111\u1ecba ph\u01b0\u01a1ng”- PGS.TS Nguy\u1ec5n H\u00e0 Thanh n\u00f3i.<\/p>\n
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T\u1eeb n\u0103m 1989, Li\u00ean \u0111o\u00e0n Hemophilia Th\u1ebf gi\u1edbi \u0111\u00e3 ch\u1ecdn ng\u00e0y 17\/4 h\u1eb1ng n\u0103m l\u00e0 ng\u00e0y Hemophilia th\u1ebf gi\u1edbi. \u0110\u00e2y l\u00e0 d\u1ecbp \u0111\u1ec3 to\u00e0n x\u00e3 h\u1ed9i quan t\u00e2m \u0111\u1ebfn c\u1ed9ng \u0111\u1ed3ng ng\u01b0\u1eddi c\u00f3 r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u v\u00e0 k\u1ebft n\u1ed1i c\u1ed9ng \u0111\u1ed3ng r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u to\u00e0n c\u1ea7u.<\/p>\n
Ch\u1ee7 \u0111\u1ec1 c\u1ee7a ng\u00e0y n\u00e0y n\u0103m 2024 l\u00e0 “Ti\u1ebfp c\u1eadn b\u00ecnh \u0111\u1eb3ng cho t\u1ea5t c\u1ea3: Nh\u1eadn bi\u1ebft t\u1ea5t c\u1ea3 c\u00e1c r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u”. Qua th\u00f4ng \u0111i\u1ec7p n\u00e0y, Li\u00ean \u0111o\u00e0n Hemophilia Th\u1ebf gi\u1edbi mong mu\u1ed1n: Ch\u00fang ta h\u00e3y d\u00e0nh s\u1ef1 quan t\u00e2m cho c\u1ed9ng \u0111\u1ed3ng ng\u01b0\u1eddi b\u1ecb r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u v\u00e0 ti\u1ebfp t\u1ee5c n\u1ed7 l\u1ef1c h\u01b0\u1edbng t\u1edbi m\u1ed9t th\u1ebf gi\u1edbi n\u01a1i t\u1ea5t c\u1ea3 nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh m\u00e1u kh\u00f3 \u0111\u00f4ng (hemophilia), b\u1ec7nh von Willebrand (VWD) ho\u1eb7c b\u1ea5t k\u1ef3 ch\u1ee9ng r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u n\u00e0o kh\u00e1c \u0111\u1ec1u \u0111\u01b0\u1ee3c ti\u1ebfp c\u1eadn v\u1edbi ch\u1ea9n \u0111o\u00e1n, \u0111i\u1ec1u tr\u1ecb v\u00e0 ch\u0103m s\u00f3c to\u00e0n di\u1ec7n.<\/p>\n<\/p><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"
Nhi\u1ec1u tr\u1ebb ph\u1ea3i nh\u1eadp vi\u1ec7n c\u1ea5p c\u1ee9u v\u00ec b\u1ec7nh r\u1ed1i lo\u1ea1n \u0111\u00f4ng m\u00e1u Khi m\u1edbi 2 tu\u1ed5i, c\u00f4 b\u00e9 L\u00f2 Ng\u1ecdc M. (12 tu\u1ed5i, s\u1ed1ng t\u1ea1i Mai S\u01a1n, S\u01a1n La) \u0111\u00e3 r\u01a1i v\u00e0o t\u00ecnh tr\u1ea1ng nguy hi\u1ec3m, ch\u1ea3y m\u00e1u kh\u00f3 c\u1ea7m v\u00ec b\u1ecb m\u1ed9t c\u0103n b\u1ec7nh r\u1ed1i lo\u1ea1n ch\u1ea3y m\u00e1u hi\u1ebfm g\u1eb7p: b\u1ea5t th\u01b0\u1eddng ch\u1ee9c […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-864","post","type-post","status-publish","format-standard","hentry"],"_links":{"self":[{"href":"http:\/\/ytevn.com\/index.php?rest_route=\/wp\/v2\/posts\/864","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/ytevn.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/ytevn.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/ytevn.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/ytevn.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=864"}],"version-history":[{"count":0,"href":"http:\/\/ytevn.com\/index.php?rest_route=\/wp\/v2\/posts\/864\/revisions"}],"wp:attachment":[{"href":"http:\/\/ytevn.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=864"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/ytevn.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=864"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/ytevn.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=864"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}